23rd August 2014 - New book
WINDOW OF OPPORTUNITY : LIVING WITH THE REALITY
OF PARKINSON'S AND THE THREAT OF DEMENTIA
Kirk W.Hall
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Publisher's
description : Window of Opportunity is the story of one person's journey through
the initial signs of cognitive impairment brought on by Parkinson's disease and
how this potentially disabling diagnosis turns into a "Window of Opportunity" to
help others on the path. Kirk Hall began noticing small signs of mild
cognitive impairment. He tells his story with directness, candor, sensitivity
and humor. He describes the long and challenging visits to doctors seeking
answers to his disturbing symptoms
and the confusion caused by conflicting opinions about the nature and
progression of his disease.
His journal notes allow him to describe in vivid detail his slowly coming to
grips with disability.
He shares the internal struggle, anxiety and stress that uncertainty causes,
not only for himself but for his family as well.
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Kirk
W.Hall has also written two children's books concerning Parkinson's Disease - Carina
and Her Care Partner Gramma
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Shaky Paws Grampa
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For
more books concerning Parkinson's Disease go to
Parkinson's Disease books
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15th August 2014 - News release
ROBIN WILLIAMS DIES WITH PARKINSON'S DISEASE
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Robin Williams (1951-2014) was an American actor and comedian who
appeared in numerous films. He recently committed suicide. His wife, Susan
Schneider, has made a statement that, at the time of his death, Robin
Williams was in the early stages of Parkinson's Disease.
His wife,
Susan Schneider wrote : "Robin's sobriety was intact and he was brave as he
struggled with his own battles of depression, anxiety as well as early
stages of Parkinson's Disease, which he was not yet ready to share publicly.
It is our hope in the wake of Robin's tragic passing, that others will find
the strength to seek the care and support they need to treat whatever
battles they are facing so they may feel less afraid."
Starting
as a stand-up comedian in San Francisco and Los Angeles, Robin Williams soon
rose to fame as Mork in the TV series Mork & Mindy (1978-1982). His film
career included : Popeye (1980), The World According to Garp (1982), Good
Morning Vietnam (1987), Dead Poets Society (1989), Awakenings (1990), The
Fisher King (1991), Hook (1991), Mrs. Doubtfire (1993), Jumanji (1995), and
Night at the Museum (2006). He was nominated for the Academy Award for Best
Actor three times and won the Academy Award for Best Supporting Actor. He
sometimes suffered from depression and struggled with drug and alcohol
addiction for much of his career. On 11th August 2014 he was found dead
after committing suicide by hanging. For more
information go
to
Robin Williams
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14th August 2014 - News release
WEARABLE SENSORS FOR PARKINSON'S DISEASE
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The Michael J. Fox Foundation and Intel Corporation are partnering to
gather and analyse data from Wrist-worn devices worn by people with
Parkinson's Disease that track users' movement. The results could help
individuals and their doctors better manage their Parkinson's Disease.
A
study was launched earlier this year to evaluate three wearable devices for
tracking measurable features of Parkinson's Disease such as slowness and
frequency of movement. People with Parkinson's Disease wore the devices
during two clinic visits and at home over a few days.
Intel engineers are comparing the data obtained from the device to
clinical observations and patient diaries in order to test the devices'
accuracy. They are developing mathematical formulas to measure the symptoms
and the progression of Parkinson's Disease. These devices can capture up to
300 observations per second. So formulas to interpret all that data and
report what it means related to someone's Parkinson's Disease can help
individuals and their physicians monitor disease.
The next phase of
the MJFF-Intel study will capture data to measure medication response such
as on/off episodes. Recruitment is expected to begin soon in locations
including New York City, Boston and Tel Aviv, Israel. The Michael J.Fox
Foundation plans to expand their use to other clinical studies. For more
information go
to
The Michael J.Fox Foundation
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